Grief experiences of older Chilean adults with intellectual disabilities: "It still hurts inside"

Alvarez-Aguado, Izaskun; Rosello-Penaloza, Miguel; Figueroa-Figueroa, Jennifer; Gonzalez-Carrasco, Felix; Arriagada-Chinchon, Rodrigo; Munoz La Rivera, Felipe; Vega, Vanessa; Farhang, Maryam

Abstract

BackgroundAlthough death and grief are universal experiences, older adults with intellectual disabilities have historically been excluded from mourning, due to assumptions about their capacity. This study explores how they experience and express grief after the loss of close individuals.MethodBased on qualitative data from semi-structured interviews with 92 older adults with mild to moderate intellectual disabilities residing in long-term care facilities in Chile, a reflexive thematic analysis was conducted to identify key themes.ResultsFive main themes emerged: emotional awareness of loss; diverse expressions of grief; disenfranchised mourning; environmental and relational disruptions; and the role of supports. Participants demonstrated symbolic, somatic, and relational ways of processing grief, despite structural and communicative barriers.ConclusionFindings underscore the need to recognise and support the grieving processes of older adults with intellectual disabilities through inclusive practices, communicative supports, and accessible rituals that honour their emotional and relational needs.

Más información

Título según WOS: ID WOS:001655150400001 Not found in local WOS DB
Título de la Revista: JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY
Editorial: ROUTLEDGE JOURNALS, TAYLOR & FRANCIS LTD
Fecha de publicación: 2026
DOI:

10.3109/13668250.2025.2604488

Notas: ISI