The problem of informed consent content for genetic research using biospecimens stored in biobanks
Keywords: Genetic Research. Informed Consent. Vulnerable Populations
Abstract
This article exposes the difficulties associated with informed consent content for genetic research when using biological materials stored in Biobanks. Comprehension of disclosed information may be complicated, particularly in vulnerable populations. Differences in understanding and perception of risks may affect consent. Legal safeguards and enhancement of informed consent procedures must be placed so that Biobanks will not be used in any way that may harm the individual who has provided the sample or her genetic relatives or community
Más información
Título de la Revista: | Bioethikos |
Volumen: | 6 (3) |
Fecha de publicación: | 2012 |
Página de inicio: | 307 |
Página final: | 312 |
Idioma: | Ingles |