The problem of informed consent content for genetic research using biospecimens stored in biobanks

Rodriguez, Eduardo; Lolas, Fernando

Keywords: Genetic Research. Informed Consent. Vulnerable Populations

Abstract

This article exposes the difficulties associated with informed consent content for genetic research when using biological materials stored in Biobanks. Comprehension of disclosed information may be complicated, particularly in vulnerable populations. Differences in understanding and perception of risks may affect consent. Legal safeguards and enhancement of informed consent procedures must be placed so that Biobanks will not be used in any way that may harm the individual who has provided the sample or her genetic relatives or community

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Título de la Revista: Bioethikos
Volumen: 6 (3)
Fecha de publicación: 2012
Página de inicio: 307
Página final: 312
Idioma: Ingles