Patient Centred Systems: Techno-Anthropological reflections on the challenges of 'meaningfully engaging' patients within health informatics research

Wong, Ming-Chao; Roehrer, Erin; Showell, Chris; Botin, L; Bertelsen, P; Nohr, C

Abstract

This chapter explores how Techno-Anthropology can contribute to more explicitly professional and ethically responsible reflections on the socio-technical practices involved in meaningfully engaging patients in health informatics research. The chapter draws on insights from health informatics research projects focused on chronic disease and self-management conducted in Tasmania during the last 10 years. Through these projects the paper explores three topics of relevance to 'meaningful engagement' with patients: (i) Patient Self-Management and Chronic Disease (ii) Patients as Users in Health Informatics research, and, (iii) Evaluations of outcomes in Health and Health Informatics Interventions. Techno-Anthropological reflections are then discussed through the concepts of liminality, polyphony and power. This chapter argues that beyond its contribution to methodology, an important role for Techno-Anthropology in patient centred health informatics research may be its capacity to support new ways of conceptualising and critically reflecting on the construction and mediation of patients' needs, values and perspectives.

Más información

Título según WOS: ID WOS:000458788100006 Not found in local WOS DB
Título de la Revista: PUBLIC HEALTH AND INFORMATICS, PROCEEDINGS OF MIE 2021
Volumen: 215
Editorial: IOS Press
Fecha de publicación: 2015
Página de inicio: 52
Página final: 66
DOI:

10.3233/978-1-61499-560-9-52

Notas: ISI